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At week number 5 on this new medicine I finally started feeling a little more like myself. I no longer feel like I'm walking through a dark black fog. I do not think that people who are normally pretty content should be put on antidepressants. It's just unpleasant. I do still feel a lot less dizzy. Today I was driving and I didn't have my hearing aid in and no radio on. Instead I listened to the ringing in my ears. It was fascinating. I can hear three different tones when the world is quiet. Mostly it's not noticeable if there is any noise around. So on the Meniere's front we're pretty stable.

I've started taking Apple Cider Vinegar again. Have no idea if it actually dose anything but since I'm taking so many supplements now I thought I might as well add one more.

TheMotherofAllVinegars

Today was my fourth appointment with the lymphedema rehab. On my first appointment they measured my legs, toe to hip every four inches, today they did it again. The lady said my results are pretty impressive for the diameter drop, so that's good. She did also note that they didn't realize how swollen they were until they see how much smaller they've gotten so maybe I should go for a higher compression on stockings. Compression stockings are horrible. They're so horrible to put on. Though I have discovered wearing rubber gloves to put them on is much better. I don't notice them once they're on as long as I'm wearing pants. I wrote a testy letter to the insurance company. Did I already tell you this? Feel free to skip ahead if I did.



Compression garments come in different levels, 1 thru 4. I was originally prescribed level 1, it's now been changed to 1 & 2. There was some confusion about what my insurance company will cover. Stockings from a medical supply company cost approximately $70.00 for a single pair of knee-highs and I'm supposed to wear them seven days a week for the rest of my life, so any insurance coverage would be helpful. In the confusion at one point my husband and I from two different locations both called the insurance company at the same time. He got one answer and I got a different answer. My person was also unpleasant. Not overtly rude, just difficult. Her name was Dora.

The next day my husband called again to get some clarification on our two different answers, this time he got Dora. She gave him the same information she gave me. When he was talking to her trying to understand the logic of the policy (They will cover levels 2 and up, not 1) she told him "Medical Grade Level 1 compression is the same as you would buy in the department store." I thought about that statement for hours. It just totally reverberated in my head and still is bothering me. I wasn't really sure why for a long time but then I realized it's because it seems like it's such a trivialization. I eventually wrote a letter of complaint, not about the coverage or the confusion but about her statement. How dare she somehow imply to my husband that my condition can be fixed by a $10.00 pair of pantyhose. What would that say about me if that were true?
I think it hit me especially hard because I worry that people are just assuming at this point that I am somehow exaggerating. Who has this many bizarre medical things happen in such a short time span? It just made me feel bad. Luckily my husband is a very intelligent man and just assumed Ms. Dora was an ass and not very bright.

Speaking of husbands, this is what we bought at World Market this weekend;


ImaLittleTeaPot

Corey needed a new teapot and wanted cast iron. It's really very pretty. I think I will make tea with it tomorrow.


I have a very busy week with appointments. So glad I took this time off to get my life in order! I'm spending all my time running around. :(

WAIT! Did I tell you one of the best things you can do for lymphedema is bouncing? Yup, bouncing on your mini tramp is good for your lymphatic system whether it's having problems or not. So go hop on something. Trampoline, mini-tramp, bed, anything that moves your skin up and down over your muscles.

Comments

( 12 comments — Leave a comment )
Caerynn Riccarde
Sep. 16th, 2013 09:09 pm (UTC)
I think you're amazingly upbeat for all the medical crap that's been thrown your way. I hope between the bouncing and the hose you can feel a little relief.

Bouncing is best done before teatime. So you don't slosh.
thelpme
Sep. 16th, 2013 09:12 pm (UTC)
Agreed! Sloshing is quite unpleasant!
ninasusan
Sep. 16th, 2013 09:10 pm (UTC)
People like Dora...I want in a dark closed room..I want night vision goggles and I want her to be required to listen to me until I'm through talking.

I know you are frustrated and this is not a time to say..oh..just roll with it, honey...this is a time that I say..you are frustrated and you are going to be frustrated until you are not frustrated anymore...I'm sorry you have to go through this crap!!!! So sorry.

Loving the tea pot...

thinking I may just get up around 11:00 tonight and just start jumping on the bed...not only will it help my lymph system but it will be wonderfully enjoyable just to watch his reaction. I might scream and talk loud too. Thanks for that visual...it gave me immense pleasure just thinking about it!
thelpme
Sep. 16th, 2013 09:14 pm (UTC)
It gives me immense pleasure picturing it as well!

In my letter to the insurance company I offered to buy Dora a pair of compression hose so she can see the difference as long as she agreed to record herself putting them on and send it to me.

Thank you, I'm still rolling..rolling..rolling..
koriar
Sep. 16th, 2013 09:24 pm (UTC)
Those kinds of teapots are lovely. A friend of mine got one and I thought that he overpaid for something that I could do just as well with a bit of plastic, but the flavor develops as you use the teapot.

Also, I now fully expect you to be jumping and skipping around the office when you get back.
boureemusique
Sep. 16th, 2013 09:32 pm (UTC)
I love the teapot! And I think I'll start using "mini tramp" in different contexts ;-)
Erin O'Bryan
Sep. 16th, 2013 10:12 pm (UTC)
I though you had a flat top stove...if so can't use cast iron, very bad news.
thelpme
Sep. 17th, 2013 12:52 am (UTC)
I don't have a flat top, and its not used that way. You boil the water in the electric kettle then put loose tea in the pot, then pour the boiling water over the tea and steep.
(Anonymous)
Sep. 17th, 2013 01:36 am (UTC)
You are one tough lady.
wematterphotos
Sep. 17th, 2013 04:27 pm (UTC)
I tried that apple cider vinegar last year, still have the almost full bottle. I can't remember what I had read to urge me to try it. I hope you are able to work something out with the insurance co.
deepseasiren
Sep. 19th, 2013 10:58 am (UTC)
My mom has one of those teapots but not in that lovely green :)
embee_kay
Sep. 21st, 2013 09:31 pm (UTC)
I just recently read about the cider. I considered it but didn't actually buy a bottle. Good luck!

The tea pot is beautiful!

I wanted to address your concern that that people might think you are exaggerating. Well, I guess I can't speak for anyone but me but I don't think that about you. I mostly feel bad that you have all of this crap to deal with. It seems that you have entered the "when it rains, it pours" portion of your life and that sucks. Hang in there! And don't let people like Dora get you down.
( 12 comments — Leave a comment )